Thursday, 16 October 2008
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| Does Anyone Take Iodoral? Belinda 04:49:09 |
| | It is an iodine supplement. I am hypo and just recently started
medication - Cytomel(T3 only) with a single dose of Iodoral (12.5g).
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| |  11 answers | Add comment |
Wednesday, 23 January 2008
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| Need Advise on T4/T3 combo Guest 04:33:36 |
| | I have had a hypo thyroid condition for 9 years. When I first was
diognosed my TSH was 40. (I gained 30 lbs in 6 months and went to the
Dr. feeling aweful) She said I was Hypo and prescribed T4. I have been
on Synthroid 150 mcg for all of these years. This amount of T4 brings
my TSH to 1.5. (Doctor tells me I am normal). However, I am still
tired, foggy, low libido, dry skin, cold and overweight. Every year I
go for a check up and they tell me my thyroid is normal. Recently I
upped my T4 by taking a half a pill more every couple of days. I was
getting desperate and depressed with the hypo symptoms.
Here are my lates results:
TSH = .02 (Lab ange .4 to 5.5)
Free T4 = 2 (Lab range .8 to 1.8)
Free T3 = 305 (Lab range 230-420)
Thyroid antibodies:
Thyroglobulin = 317 (Lab range less than 20)
Thyroid Paroxidease = 875 (Lab range less than 35)
Adrenals are normal.
I still have all of the hypo symtoms. I could sleep 12 hours a day and
still be tired.
I went to 2 different Endo's neither will give me T3 combo to try and
both said they don't prescribe Armour either.
I am considering self medicating by lowering my T4 and adding T3. I
know I can order T3 on the internet.
Also, I follow a very low carb diet and that is the only way I can keep
my weight down. But not down enough to be normal. Still 20 lbs
overweight ....
Need advice please ....
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| | 41 answer | Add comment |
Friday, 14 December 2007
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| labelled as somatizer - what to do? Moriarte 20:48:37 |
| | Hi,
I had to go to the doctor yesterday to have my ear syringed, and
happened to glance at the screen while the nurse was busy to see the
following notes, made 5 or so years ago coincidentally when I had the
procedure done last time: "Complaints of longstanding ill health.
Visited Practise therapist [date] for CBT following anxiety attacks -
label as somatizer."
I am absolutely furious. I had been back and fore to them for years
complaining of all the various symptoms relating to hypothyroidism, and
only mentioned the panic attacks when they became so extreme I couldn't
cope with life. These started happening when my TSH must have been
rising, I was extremely hyper, losing weight and classically
thyrotoxic, and they more or less went away with starting thyroxine. I
am extremely bitter about not being diagnosed for 15 years and losing
the best years of my youth to this problem; to find my fight to get
them to take it seriously labelled as a psychiatric disorder makes me
more livid than I can describe.
Am I within my rights (in the UK) to see the whole of my medical
records and demand that these remarks (made pre diagnosis, I must
stress) are removed? It's no wonder that I cannot persuade them that I
am still not well on thyroxine when each new GP I see reads this and
dismisses the problem without consideration.
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| | 12 answers | Add comment |
Wednesday, 12 December 2007
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| How much hydrocortisone is too much? Jd023456 22:01:23 |
| | Hey Skipper? How much HC is too much and what kind of symptoms does one
get if one is taking too much?
J.d.
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| | 3 answer | Add comment |
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| opinions on symptoms and dosing Linda Brown 20:54:09 |
| | I have been dealing with health issues for about a year now and in the
Spring I was diagnosed with Hashimoto's. My First TSH was 3.4 UIU/ML (that
was back in Jan and was labeled as normal and dismissed). The next two were
2.8 and 2.34. My Endo has upped my replacement dosage each appointment and I
am now up to 100 mg. She is only seeing me every 3 months.
After the last appointment and dosage increase I had a "good period" but
then about a month later started feeling crappy again. Now 2 weeks after
starting at 100 mg I am again entering a "good period".
My worst symptoms are hand and foot pain (carpal and tarsal tunnel
syndromes?) and when it is bad I can barely walk. At the end of this most
recent "bad" spell my hips were involved too. My body temp is above 97 most
days now which is progress for me, I have stopped lactating, anxiety is
better and hair loss is better too. I am also taking anti-depressants (they
have helped a lot), hydroxycloroquinine (in case it is lupus!!) and major
pain meds (anti-inflammatory that don't seem to do much).
Not to confuse the issue but I also have a 5mm pituitary microadinoma...my
endo does not think it is currently causing any problems.
So my question is this...my endo stated at my last appointment that it is
time to "give up" on the idea that my joint/foot/hand pain is related to the
thyroid issue. She suggested that even though my TSH levels had barely
changed between the last two tests that I should be feeling better simply
because I have been on the replacement therapy for a while now. Does this
make sense? From everything I seem to be reading, each individual has a
different "level" at which they feel well. If I felt crappy at 2.8, isn't is
possible that I would still feel crappy at 2.34? and why would my last two
periods of improvement have coincided with increased amounts of replacement
hormones?!?!?
Everything I have read has suggested that this is a slow process but if that
is true then I don't understand why my TSH has moved so little. My endo made
it sound like they original amount of 50 was "no small amount" and now I am
up to 100. Does that make sense? Could the pace of my thyroid deterioration
be keeping up with the dosage increases?
I guess I am holding out hope that I don't have a degenerative nerve or
joint disorder, but my rheumatologist is stumped too. I just don't fit under
any other diagnosis other than hypothyroidism. Has anyone else had the joint
pain and muscle aches as their major symptom? Do I have to keep moving up at
such slow dosing increments? Could I push my doc to try 150 next time
instead of just going to 125 or is that too much? Should I push her to see
me every 6 weeks?
My endo does believe I should be aiming for 1.0 for TSH to feel my best so
that is good but I was crushed to find out that she didn't think my joint
pain was related.
Thanks for any input or experiences you guys have!!!
Linda
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| | 42 answer | Add comment |
Saturday, 1 December 2007
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| Synthroid Bre 15:17:53 |
| | I was taking cytomel and the physician added synthroid generic because the
t4 was low. Is there any way this could cause a weight GAIN?
Thanks.
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| | 14 answers | Add comment |
Wednesday, 21 November 2007
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| thyrosense Tj 02:15:45 |
| | Hi
I'm just wondering if anyone out there has heard of a product called
'Thyrosense'. Apparently it's available at health food stores and is somehow
supposed to improve thyroid functioning. Has anyone heard of it or know
anything about it's safety and efficacy?
At this point, I don't even know for certain that thyroid is my problem
(although I suspect it is). But I'm starting to feel like I need to do
something to help myself. I don't know if it would be wise to try something
like that right now, while I'm in the middle of medical investigations. The
problem is, and I'm sure a lot of you can identify, that I have been sick
for so long, and the process to diagnosis is soooo slow. I need to get
feeling better and I don't feel confident that I'm close to any answers. I'm
now considering the possibility of giving this product a try to see if it
will help at all.
Just a bit of background on my situation. My mom has Hashimoto's and Lupus.
I've had episodes of illness mainly over the past 5 years, with the last one
being most severe. I have a lot of symptoms which would fit a diagnosis of
thyroid problems, but could also be a sign of something else. I've had
problems with my bloodwork that were not in the critical range, but oddly
similar to abnormalities that my mom has had. Unfortunately, nothing is
definitive at this point. My TSH has been within normal range (last was
2.078 collected at noon) and I am now awaiting results of some other
bloodwork, including thyroid antibodies and some others. I have never had
the T3/T4 checked. I also have a thyroid ultrasound scheduled for
mid-January.
Any thoughts would be appreciated.
Thanks,
TJ
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| | 4 answer | Add comment |
Friday, 9 November 2007
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| Thyroid help please. Multinodule goiter and TSH info. :) Guest 21:34:48 |
| | Hi,
This is my first post here and Im so pleased I found you all.
I hope Im not long winded with this but I wanted to outline my
situation.
Basically I went to the GP for a stomach problem and she noticed a
goiter, she said I had many symptoms of Hyperthyoid.
Frequent bowel movements, Psroisis, paceing, anxious, eat loads and
never put on weight, cant concentrate, loads of energy and never sleep,
plus my eyes are apparently 'intense', so she said.
I had a blood test and TSH came back in the 'normal' range.
Its actually tSH is 0.55 and t4 is 16.5
I then had an uptake scan, which showed normal funtion apart from the
upper pole is increases showing perhaps an autonomous nodule.
I then had an ultrasound and it shows a cystic multinodule goiter.
I have a biopsy in a few weeks and the endo I saw said he wasnt that
worried.
Great, well I am. I asked for an antibody test and he said no.
I have all these symptoms and I feel like Im going mad.
Does anyone have any suggestions? Is that TSH normal, I gather its low
but in the normal range?
Any thoughts.
Thanks in advance.
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| | 2 answer | Add comment |
Monday, 11 June 2007
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| Goitrogenic food quantities Michelle Duford 23:19:52 |
| | I have read that a hypo person should not eat goitrogenic foods in large
quantities. What is considered to be a large quantity? 1 cup? 2 cups?
More?
I can easily eat 2 cups cooked brussel sprouts or brocolli for supper. Is
that considered a large amount?
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| | 7 answers | Add comment |
Wednesday, 6 June 2007
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| HELP: Eutyrox, Euthyrox, Synthroid Richard 08:20:33 |
| | I looked this up on Google but I'm getting no answers. Please, someone with
50mcg generic Eutirox - tell me what your tablets look like.
50mcg Synthroid is white.
And there are 50mcg white tablets named Euthyrox, imprinted with "50" and
"M" below that (for "Merck").
Now I'm wondering about Eutirox. I have 50mcg, 75mcg and 100mcg "Eutirox"
pills, with only "50", "75" and "100" imprinted on them, and no other
letters like "M". And it is really strange that these tablets are not color
coded. They are all white. Anyone have these? Is this normal? Or do I have a
box of sugar pills?
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| | 6 answers | Add comment |
Saturday, 25 November 2006
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| New member...need general support & maybe a doc in Pittsburgh! Kaimannaa@Gmail.Com 08:19:16 |
| | Hi, all!
I'm new to the group. I was diagnosed (after much fighting with my PCP
about getting tested) with a severe case of Hashimoto's hypothyroiditis
three years ago this past July. Right now I'm on Armour, walking with
my husband, bellydancing, and playing with my cat. ;)
I've been feeling pretty awful lately, and my new PCP (just moved from
Detroit to the 'burgh) ran a thyroid test on me. My TSH scored a 5.26
(lab ref is .40 - 5.50), free T4 .9 (ref .8-1.8) and my free T3 is 261
(ref 230-420). My doctor says to keep my RX as-is, but this isn't how
I should be feeling. I fully intend to fix this, as I am tired of
being...well, tired! I sleep most of my time away and can't move
quickly or even think (bad thing for a freelance writer). I suspect
part of it is my thyroid - many of my symptoms are back; in addition to
the sleepiness and inability to think, my skin and hair are quite dry,
my hair is falling out (gah!), major brain fog, migraines, cold all the
time...you name it. It's very frustrating...I have no libido, either,
and we just married in April!  (I am on the Pill, which I loathe.)
Does anyone know of a good doc in the Pittsburgh PA area? I've found a
few on the Top Docs list, but am just trying to cover my bases and see
if there are newer referrals and/or info.
Oh - one more thing. My test also reported "moderate" leukocytes (next
one up is "large"). These are white blood cells, right? Any ideas on
what that might mean? I didn't find anything online.
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| | 4 answer | Add comment |
Saturday, 14 October 2006
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| Flu shot? Agent Starling 11:53:36 |
| | My mom said that since i have Hashimoto's thyroiditis(which is an
autoimmune disorder) that i should consider getting a flu shot? I didnt
know that was one of the guidelines to getting the shot. I know 65 and
older are recommended to get one etc.....but if i went into the doctor
(GP) and told him i had Hashi's would he even know what that was? or if
i just went to a clinic would they know that its an autoimmune disease?
What my question is if you have Hashi's here are you going to get one?
Clarice
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| | 38 answers | Add comment |
Sunday, 17 September 2006
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| advice on med change Cara Smith 21:17:01 |
| | Hi everyone
I got directed here from someone on the About site.
I'm looking for input on my med change.
I've been on meds for 4 years.
I was taking 240 mg Parke Davis thyroid, and 50 mg eltroxin for most of
that time, and with that my T4 was at the mid point, and T3 in the
upper part of the range. At this dose I felt pretty good, but not
normal, and I could lose weight if I put a huge effort into it.
I got tired of always feeling slightly low, going to insane efforts to
lose weight, then failing over and over at maintaining, leaving me
chronically dieting and trapped on a low carb diet.
In Sept I found a naturalpath who does Wilson's protocal. In October I
dropped my eltroxin to reduce my T4. At this time I was on the body for
life program, doing insane exercise, eating what I did before when I
wanted to lose weight, which usually works. This time I lost nothing in
3 months and I worked so hard. Christmas put on several pounds.
I tried Wilson's in last Dec till now, going up to 180 gm of pure, time
released T3 a day. I did not see a difference in my AM temp, which is
stable at 97.5. I noticed no difference in my symptoms. I'm weaning
down now and will be changing my meds.
The ND wants me to go on Armour, plus T3. He wants me to start at 120
mg, because he believes it's much better than the Parke Davis.
After some thought, I'm thinking I want to go back on my previous meds
of parke davis thyroid plus the 50 mg T4, and do the Armour if he will
let me take that much.
After 5 months of this I'm getting freaked out about my extra weight,
and I'm anxious to get it off. I could lose before on my previous meds,
I just couldn't maintain.
I need advice here about what to do. I assumed T4 is needed to convert
to T3 when we're really active, which I am. If I'm not taking any, or
it's low by not including and eltroxin in my meds, am I getting what I
need for exercise, and thus weight loss?
What I want to ask my ND is to try the more potent? armour at 240, plus
the 50 mg T4, then test after 6 weeks. I believe I was undermedicated
before, despite the high dose, and I'm aiming to be optimized for once.
Ideally, I'd like to see both my T3 and 4 in the upper quadrant of the
range.
Alternately, I can do what the ND wants and do the armour plus T3.
Anyone here have negative experiences with on meds that don't include
extra T4?
What do you guys think? I'm tired of experimenting and just want to get
back on something that works...
Maggie
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| | 2 answer | Add comment |
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| fear Guest 17:50:36 |
| | in my head i get recurring wounds. which are inhereited my two daughters. and i have lost all hair because of this wounds. I am always irritating type and could not get along with anybody well. Whereever i go i pick up a fight. I have got intense fear in my mind. Even very minute stimulus like some body cleaning the throat increases my breathing rate for few minutes. I have become very pessimistic nowadays. due to fear of everything whichis uncontrolable i think of commiting suicide. can any body help me in getting rid of my fear. kindly help. |
| | Add comment |
Monday, 14 August 2006
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| Dr Skinner Dappy 11:53:36 |
| | Is anyone aware that the GMC has made the hearing for Dr Skinner 7
August at 9.30 - he has asked again for it to be a public meeting so if
anyone can attend he would really appreciate it.
Dappy
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| | 29 answers | Add comment |
|
| are red arms a sign of hyperthyroid? Tootal2 11:37:18 |
| | My brother is 6' 1" and 145 lbs. He has red arms and very bad looking
fingernails. can this be hyperthyroid? My mom is trying to get him to
see a doctor but he does not want to go
thanks
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| | 5 answers | Add comment |
|
| hello group jo annT 09:26:39 |
| | i hope you don't mind me posting. i am joann aka jo i am 48 , i have had
hypothyroidism for over 6 years now plus i am also insulin type 2
diabetic. i take a 100 mcgs of synthroid daily.
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| | 4 answer | Add comment |
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| what should my tsh be at? Tootal2 06:58:42 |
| | The last test i had said my tsh 3.167. im on synthroid 50. should it be
lower? I feel fine thou. A lot better then i did without sythroid.
thanks
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| | 8 answers | Add comment |
|
| New to the group -- Questions and confused Sheldon 05:39:15 |
| | About 4 years ago I was diagnosed with hypothyroidism (based on a TSH test
at a health fair), and my doc put me on thyroid meds. I was soon bouncing
off the walls, stopped taking the meds and went to another doc. He ran a
full panel and said my thyroid was fine. (I gave myself plenty of time to
run the meds out of my system.)
Since then my TSH has been creeping up and my new doc did another panel and
started me on a very small dose of thyroid meds, then upped it a bit. My
problem is that I've been feeling quite tired lately, but can still function
with no problems. I was not tired until starting the meds, which makes no
sense to me.
After six weeks of being on the meds he did another panel and I'm right on
the money, so he refilled my script at the same dosage. I was thinking
maybe I should be on a higher dose, but after snooping around in this group
it seems that I really need to give this some time and the tiredness should
go away. Do you all agree?
I should add that my old doc wound up triggering a case of Generalized
Anxiety Disorder, and a shrink is treated that with very good success.
Thanks.
Sheldon
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| | 7 answers | Add comment |
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| Cavitations not important for most people. Jd023456 04:40:29 |
| | I have come to the conclusion that if cavations cant be seen on x-ray
and most people have a relatively functional immune system they,
cavatations, are just not that important. I will have some teeth out in
the near future and will not concen myself with cavatations.
Jd.
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| | 13 answers | Add comment |
|
| hypo on meds, cant lose weight Angie 02:01:33 |
| | I'm practically at wits end. I'm hypo but with meds I now have a TSH of
1.84. I'm counting calories and watching fat (only 1200 calories a day and
I'm 100 pounds overweight). I am making an effort to exercise daily (was a
couch potato). I cannot lose a single ounce! I need to lose weight, I
can't stand myself anymore! With my TSH 1.84 (was 3.86) why can't I lose
anything? I'm not due to go to the doctor again until early November.
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| | 16 answers | Add comment |
|
| so what's the best test for adrenals ? Nrsmac 01:08:15 |
| | Ok, thanks so much for everyone writing in to help me. I am ordering
on line a morning and evening cortisol saliva test? I've had, am and
pm blood, 24 hour urine and a konesberg test , blood pressure tests,
pupil tests by my naturopath, is that not sufficient? They all came
back normal by the way.
thanks, Kim
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| | 9 answers | Add comment |
Sunday, 13 August 2006
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| horrible leg cramps on starting Armour Nrsmac 19:17:16 |
| | Hi everyone, it's Kim again. I've been on Armour for 6 weeks, and
these legs cramps and numbness are getting worse. Mike was writing me
this can be a normal sign, how long does it last? They only got bad
when I started on this med. And also, this is going to sound
ridiculous, but is anyone's urine green colour since on this med and
what the hell does that mean..that can't be normal?
Kim
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| | 9 answers | Add comment |
|
| Amiodarone-Thyroid Crisis (AIT) Jubilee 07:08:09 |
| | This is my first time posting. I'm HYPER-thyroid, in a "thyroid
crisis," and need advice about what to do. I feel like I'm going to be
pressured into having a thyroidectomy. I have a complex cardiac
condition requiring amiodarone. After 3 years it is causing
thyroiditis, which is causing afibrillation -- the very condition it's
supposed to cure.
Do I (1) stop the amio -- which would be dangerous for my heart, (2)
switch to a less effective drug (sotalol) which also has dangerous side
effects; (3) treat the thyroid with prednisone and tapezol and whatever
other drugs there are (and wait for the other deadly amio effects to
set in); (4) use the radioactive iodine cure (which they say won't work
because of the amio overload); or (5) have the thyroidectomy?
My T4 jumped from 1.9 to 3.00 and my T3 went from 105 to 260 after
tapering off the prednisone after 1 month -- and I am now back in
a-fib. I don't really know what all those numbers mean but it sounds
like I could be a candidate for "thyroid storm" especially with the
anesthesia of the surgery. (And I'm also due for open heart surgery
sometime in the next year or so).
The a-fib is a nightmare. The hyperthroidism is a nightmare: I'm hyper,
hot all the time, forgetful, miserable, and feel like I'm generally
doomed. I'm almost rather just get the open heart surgery over and,
hopefully, be done with the need for the amio and any of this stuff.
I'm very impressed by the knowledge and answers many here have about
thyroid problems and was hoping you might have suggestions. Does
anyone know if it's possible to get a European drug called dronedarone
(amio without the iodine) and where? Could I get it in Canada? Also, is
there any strategy I can use to...
I just keep going around in circles. I don't what to die or live a
terrible quality of life because the FDA won't approve a drug developed
by the French!
How dangerous is my thyroid situation, what do you think of
thyroidectomys, and what do you think I should do? I just don't really
trust the American health system!
Thanks for your advice and help.
Sincerely,
Julia
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