Tuesday, 25 July 2006
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| Disposable Camera Pill Guest 04:54:50 |
| | Hi,
My daughter has Crohn's. Her GI mentioned her having the disposable
camera pill. Before, she had mentioned her getting a Small Bowel
Follow-Through first. Now, she mentioned her getting another pill,
which I think is dissovable, first to make sure the camera pill doesn't
get struck, I think instead of the Small Bowel Follow-Through, though I
am not sure. Has anyone had experience with the dissovable pill? How
did it help to see if the camera pill can make it through if it
dissolves?
Thanks for all information.
Debbie
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| |  5 answers | Add comment |
Monday, 24 July 2006
|
| Re: stomach wall. Paul P 17:22:21 |
| | I have used misleading terminology. Please forgive.
I have no muscles under the skin (scare) that holds in the organs in my
abdomen. Infection caused the original sutures to separate and part the
muscle wall.
This is the area that is to be reconstructed. So it better retains the
intestines and other organs. Also with muscles in stead of only thin skin,
fustulization should be reduced.
My stomach as an organ is just fine.......plays on tune & in key :~)
Paul.
"Sdores" <sdores@bellsouth.net> wrote in message
news:oUswg.12909$Ur.7572@bignews7.bellsouth.net...> Paul, just wanted to wish you good luck and fast recovery from your up > coming surgery. I hope it goes well and healing is quick. Do you mind > explaining more about the stomach reconstruction surgery? I have never > heard of this. UM MOM Susan>
"Paul P" <paulREMOVE@REMOVEppinyotREMOVE.com> wrote in message > news:UBswg.7300$V74.6829@trnddc08...>> Paul,>> I am not insensitive to your crohns situation. I thought you may like a >> diversion.>> I am headed for my 18th operaton this 31st of the month. Fistula >> reduction and stomach wall reconstruction. Plus side I am not infected >> and should enjoy a fast recovery!>>
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| | Add comment |
|
| Gi appointment Gamstang 08:46:25 |
| | I went to see the GI for a follow up after my colonoscopy. He said
everything's fine, the biopsies are clear, he didn't comment much on the
ulcer in my rectum. I need to have a barium enema and a CT scan to find out
why I'm still having pain and diarrhoea. I'm so pleased about this, I asked
if the further tests are necessary, which he said they were, but is this
just so they don't get into trouble for not covering everything? I'm still
getting blood with bowel motions, lots of mucous and pale stools too.
I'm going to see a gynaecologist too to check for endometriosis which I
found out my mother has, and my symptoms seem to point to it. I get blood
with bowel movements when I'm having a period, and my periods are occurring
every 7-10 days without fail. The doctor asked why I am so pale, I'm hoping
it's because of the menstrual bleeding. He said he doesn't see how
endometriosis could cause my bowel problems, but I think it is - if that's
what I have!
I'm not too concerned as I'm convinced my bowels are fine and it's all down
to gynaecological problems, but I wanted to ask if the barium enema and CT
scan are just procedure so they know they've covered everything before they
tell me I'm fine?! My celiac test came back negative, are celiac tests 100%
accurate? Can someone have wheat intolerance without having celiac disease?
Maybe I should eliminate certain foods to see if it helps, I have a problem
with dairy which I take lactase enzymes for. It's a thought.
Thanks to everyone for being such a great help and for all the support I
have received here 
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| | 27 answers | Add comment |
Sunday, 23 July 2006
|
| Nasal Crohn's? Musashi 13:55:07 |
| | Does anyone know, or have had Crohn's in their nostrils? I'm wondering
if this is possible. I'm a bit worried that I may have this. I've had
continuous nose problems since I was a child. Very allergic symptoms,
bleeding, plus post nastril drip symptoms (mucous continually running
down the back of my throat, getting blocked at the back and needing to
snort, nasaly speech etc). First of all the put it down to my broken
nose (septum), then they put it down to allergies to the cat (I don't
live with the cat anymore) then they put it down to ,and is still in
review, to inflammed and infected adenoids which I'm probably having
taken out soon. My flare up of bleeding started about 2 weeks ago, it's
pretty heavy, it drips out. Last night I had a look up there with a
torch as best as I could, and now I'm really worried at what I saw.
There's white spots all over the place, but some are white protrusions,
sorta stem like. One by my septum looks burrowed in and is red raw
around it.
It's really freaked me out. I can't believe when they've looked up
there with the scope before they've not seen anything, I just get the
"your nasal passages look clear" comment. To be honest, I don't think
they look properly in the nasal passages with their scopes, to me they
get past that really quick to go through further.
Am I a freak? Lol!
Musashi
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| | 19 answers | Add comment |
|
| All the Same: Costco Wild Salmon and Fish oil Blend Miso 10:12:03 |
| | My doctor prescribed me fish oil, 9 grams a day to help with my
Irritable Bowel disease. I started taking the Costco brand. I have
developed anxiety issues since taking these capsules. I have stopped
taking them and my anxiety in general is reduced.
Just wondering if all fish oil is the same or if it is just a
coincidence that I am less anxious now that I stopped taking this Wild
Salmon and Fish Oil Blend?
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| | 12 answers | Add comment |
|
| any MD suggestions Intestanne 07:43:05 |
| | I live outside Charlotte NC
Any suggestions on good GI MDs who specialize in Crohns?
Thank you!
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| | 1 answer | Add comment |
|
| Curing ulcers, IBS, CROHNS, DEPRESSION, ANXIETY, CANCER...? Caesarjbsquitti 02:20:00 |
| | Curing ulcers, IBS, CROHNS, DEPRESSION, ANXIETY, CANCER...?
I heard about your mothers suffering from Ulcers and bring forth the
following logical possibility.
1. We all know by now that the causal factor was a bacteria.
2. The problem is quite simple. The bacteria sets up many colonies
within the system, in the intestinal system where places to hide can be
easily found.
3. The treating of bacteria may eliminate a majority of the bacteria,
but small colonies may escape detection or treatment, rending a relapse
very likely. The problem is the nature of the intestinal trac, and the
need to include alot more 'fiber' within the diet to remove dead, dying
or damaged bacteria. A failure to do this will incease the ability of
the 'bad bacteria' to regenerate.
4. A positive approach. Today more research is being focused on
'probiotics' or 'the friendly bacteria' within the system (found in
yogurts ie Activa) that must be "reseeded" within the intestinal
system. This 'friendly bacteria' is the key to processing food, and
in attacking bad bacteria.
5. The problem is that treating with anti-parasitic drugs or herbs,
you kill both bad and good bacteria....and if we do not repopulate the
good we are in trouble.
Treating ulcers, IBS, CROHNS, ANXIETY, DEPRESSION, CANCER, AND OTHER
DISEASES...
http://www.abeautifuldifference.com/webdoc.535.html
Caesar J. B. Squitti
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| | 1 answer | Add comment |
Saturday, 22 July 2006
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| OT 6m Paul P 21:04:47 |
| | Paul
Did you get much action on 50Mhz this recent contest? My rig was in the
shop.
Paul
kb3lzp
"Paul Hinman" <paul.hinman@shaw.ca> wrote in message
news:O8Tvg.211102$iF6.52227@pd7tw2no...
I have always had problems with fatigue which is not unusual for a crohnie.
My anaemia is certainly a contributing factor. My PCP thinks that there may
be some thyroid and/or adrenal problems lurking around in my anatomy. He
has ordered a bunch of blood work. The only problem is I have to have the
blood drawn between 8 and 10 AM the same time that my bowels are the most
active.
Oh well, just part of the ongoing adventure I guess. Will let you know what
the results are. I was on thyroid replacement therapy for a while but when
I was in the hospital they decided that I didn't need it. When I think
about it though, after eleven transfusions, it wasn't really my blood that
they were testing.
Paul
--
Paul S. Hinman - VE6LDS
long West 113 deg 27 min 20 sec
lat North 53 deg 27 min 3 sec
Maidenhead Locator DO33gk
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| | 2 answer | Add comment |
|
| Ostomyland Weekly Support Chat is Saturday 22nd July Kathy from England 12:07:04 |
| | NOT July 21st - sorry for the mistake.
Kathy
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| | 2 answer | Add comment |
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| Ostomyland Weekly Support Chat 21st July Kathy from England 11:15:22 |
| | Main Chat is Saturday 8pm UK Time which is 3pm EST ish.
Have you been told you need an ostomy (colostomy/ileostomy) to deal
with your Crohn's or Ulcerative Colitis?
Maybe you have already had this surgery and are coping with it?
Or maybe a loved one is dealing with this and you want to support them?
We are an ostomy support group, here to help you with both the
practical side of living with your ostomy and the emotional issues.
You will meet people of all ages and with different medical conditions
( not all have IBD).
Some have a reversable ostomy, others a permanant one. We also have
those who have undergone a reversal or a J pouch.
Don't face it alone.
Want to chat another time? The room is open 24/7 and is usually busy.
***NEW*** online clock to help with those time zones!!
Now you can check what time it is in the UK:
http://www.ostomylinks.co.uk/chattimes.html
=========
To join Ostomyland via java go to:
http://www.ostomysupport.info/chat.html (Jason's page)
Or http://www.autoimmunity.co.uk/chat/ostomyland2.html (Kathy's back up
page)
and join us in the ostomyland chat room from there. A free-to-use Java
Client is embedded into the page that is dead easy to use.
Nothing to download.
=========
If you use mIRC, or Besirc or some other IRC Chat Client, here's the
server details you need to connect to Ostomyland:
Server: irc.zirc.org
Port: 6667
Channel: #ostomyland
If you prefer a specially configured version of mIRC is now available
which will take people directly to the new channel on the new server.
Full details and the download link can be found at
http://www.ostomysupport.info/mirc.html
(This is my favourite - mIRC can do so much more!)
WebTV Users, you need to use your own TV based software to join us -
included free as part of the WebTV browser software. Use the server and
port and channel
info when requested by your software to join.
=========
We often have members who have never been in a chatroom before.
Please don't be nervous. These pages will show you exactly what to
expect and what to do. If you're still unsure after you've looked at
them, email me for help. (Kathy-tas (at) ostomylinks.co.uk)
http://www.ostomylinks.co.uk/chathelp14.html
=========
Wrong time-zone for you? I shall be in the room 6pm - 9pm Perth
(Australia) time, 11am - 2pm UK time on SUNDAY.
We usually get a small group in - come and join us.
=========
The channel is open 24/7 for general chit chat or ostomy talk
during the week.
If it's quiet, stay a while - someone else may join the room soon.
=========
Look forward to seeing you in the meeting Saturday night, the weekend
or later on
in the week.
Kathy
Jason's Living With a Colostomy Website:
http://www.ostomysupport.info
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| | 3 answer | Add comment |
|
| Imuran Fears Waywardjam@Gmail.Com 02:43:15 |
| | Hi Everyone,
It's been a while since I have posted though I have been keeping up
with the topics at times. I have ulcerative colitis and have been
doing the see saw of Prednisone/Nexium with 9 tabs of Colazal and
mesalamine enemas until I'm leveled off to then just solely taking the
Colazal & mesalamine. Each time I gain a couple more weeks of calm
existence before my UC inevitably flares up. I have been
fighting/denying my most recent flare up for the last week or so, but
last night I had near crippling episodes of pain and bloody bowel
movements. So far today I feel fine so I hope it was just a one time
flare, but deep down I know better. At my last doctor visit about a
month ago, he suggested the next time I decline we return to the
Prednisone coupled with Imuran and slowly wean me off the pred to just
Imuran. He added the side effects of Imuran include bone marrow loss,
greater weakness of the immune system to fight illness, and he said it
has been suggested it causes cancer. Needless to say, I have not been
that happy with the page long list of side effects I have experienced
from my prednisone usage (acne, shingles, central cirrus retinopathy
just to name a few of the temporary setbacks I had). As such, I am
very concerned about being put on a more serious immunosuppressant if
the side effects will be worse. Can anyone help me with their success
or horror stories concerning Imuran? I would really appreciate any
advice fellow UC sufferers may have before I just throw my health to
the doc's hands.
Thanks,
Wayne
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| | 12 answers | Add comment |
Friday, 21 July 2006
|
| 6mp and white blood cell count? Musashi 05:51:08 |
| | Hi guys,
Just a question on behalf of my Mum. She's been on 6mp for about 5
months now. She was on Azathioprine before that for about 4 months, but
wasn't getting on well. Anyway, she got a letter the other day from our
physician saying that her white blood cell count has gone too low.
Anyway, what should she expect to happen now? Do they lower the dose
maybe, or try her on a different med? She's scared to try Remicade
because I had the rare side effect of a scar tissue blockage. I keep
telling her that was rare and I'm just unlucky. The rubbish thing is
that she's doing so well on 6mp with her Crohn's. She's gone into
remission. The only annoying thing is her nausea. She can't stand nice
smells, like me after I've showered lol!
Her iron has gone low too. The nurse at the GP surgery took bloods
because she keep spotting all the time. It's because she went for a
smear test and blood just started running down the instrument. Nurse
wasn't too happy about that so sent her off for blood tests. Her
hormone levels have come back normal which means she's not menopausal
which we find strange. She's 48 and is spotting very often and her
periods are all over the place. Can this happen with the low iron or
low white blood cells though?
Thanks for any comments. I think me and Mum are aliens the weird stuff
that happens to us!
Oh yeah, on that topic I think I have Crohn's in my nostrils. My nose
has been bleeding for weeks now (heavy, drips out). Last night I had a
look with a torch and saw lots of white spots and some have stalks.
That's shitted me up real worried (scuse my french!) I've got an ENT
appointment in 3 weeks so will have to wait until then. They do hurt
too. I'm a freak!!!!!
I bet Poo will laugh at my stalks now :oD
Musashi
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| | 6 answers | Add comment |
|
| Bad food equals aggravated Crohn's Myron 03:42:11 |
| | I'm very fortunate to have a mild case of Crohn's.
With care and time between certain types of food
I can eat quite a lot. Went out to eat Saturday. We
were out shopping and going to see Dead Man's Chest
and the kids wanted Olive Garden. As long as I am
careful and don't eat much salad I do fine. I had lasagna.
Must have been tainted.
By the end of the movie I was in a sweat and cramping.
Vomiting soon after and later diarrhea. Vomiting stopped
Monday but I'm still having to make trips to sit down.
Of course after all of this my area of Crohn's is hurting.
I don't like taking it but about once a year I have to go a
one month course of Prednisone to reduce a flare up.
Luckily the GI gave me a refill last time so I went ahead
and got it filled. Called his office and he is out all this week.
Let the nurse know I was starting the Prednisone. I don't
like to side step my doctor but I figure after 20 years I
should know if I need something or not.
Still some cramping tonight and I'm hungry but I'm eating
very little at a time and seeing how I go. Told my wife
on Sunday I had forgotten how bad I could feel. Guess I
ought to count myself lucky in that regard.
Thanks for listening.
Myron
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| | 6 answers | Add comment |
Thursday, 20 July 2006
|
| Re: inflammed hip - Synovtis - Reactive Arthrtis / or Inflammation in other parts of the body than B Phil 11:58:54 |
| | No one else has/ had similar problem, mmm, interesting!
Wonder if a Gastro would even know.
Mine doesn't until other Specialist informed him.
On Sun, 02 Jul 2006 03:38:23 GMT, someone@somewhere.com wrote:
Hi all, interested in hearing from other Crohn's or coltis sufferers>who have had / have similar additional problem as below.> I have been suffering from a very badly inflamed left hip, the>inguinal ligament appears from MRI's and CT's and surgery, to be the>ligament that is inflamed.>Condition was managed by steroid injections into hip joint every 14 to>18 months since 2000, but since August 2005, injections not longer>last more than 5 days and even after two arthroscopic surgeries to>basically trim away some of the inflamed tissue, problem remains.> A pain management doctor at www.metrospinal.com.au>is looking at doing an radio nerve degeneration on the nerves, but the>test run with local anesthetic he did two weeks ago did not bring much>pain relief. I am waiting for him to get back from holidays mid July>to let me know what he intends to do next as I am waiting till mid>July to see my Rheumatologist. to see what he may be able to do.>( what is it with specialists these days that one has to wait weeks to>see them, if not months and I'm a private patient!!)> Anyway I would be interested in hearing from anyway who may suffer>from same or similar problem> Thanks Phil> you can email me direct if you wish at>phillip<nospam>@pmassociates.com.au> just remove the <nospam>
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| | Add comment |
|
| Constipation/CD/blockage??/need advise in some areas Mzb 11:43:09 |
| | I have CD (in the TI) but my main symptom for many years has been
constipation and of late it has gotten worse. The pressure gets so great
that I can feel it with every breath.
I have tried fibre and it just makes things worse.
I am now trying mirilax. I took my 3rd dose tonite (so it has been 48 hours
since my last dose). So far no joy. If that doesn't work by Sunday, I might
switch to Zelnorm.
Is there any way to tell if I have a blockage? I know I don't have a
complete blockage as I have had small, "incomplete" bm's. But what are the
symptoms of a partial blockage?? Also, I assume a full blockage would have
symptoms of severe pain and cramping?? Is this true? (I have had NO
cramping)
Over the years, my GI has pretty much considered the constipation as being
more of an IBS problem rather than IBD. But it sure often feels like a very
narrowed gut. But are my symptoms consistent with that?? (I know they are
consistent with IBS).
Also, I am on about 7 asacols per day. They seem to help tremendously with
another symptom, gnawing pain. But it does nothing for the bloating,
pressure, and C. I sometimes wonder if the asacol doesn't cause this, but I
am afraid to stop the medication.
I am thinking of just doing liquids tomorrow.
Anyway, are there any suggestions??
Mel
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| | 8 answers | Add comment |
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| pINGING JEFF Mzb 07:01:29 |
| | Is there any GI guy you recommend at the Un. of Mich Hospital??
Mel
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| | 2 answer | Add comment |
|
| 14 best hospitals in the us Jeff and Mary Berk 06:55:09 |
| | thought this might be of interest. i noticed in the last few years this
list has not changed much, but the order has. my u of m is no. 12.
http://www.webmd.com/content/Article/124/115730.htm
jeff
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| | 4 answer | Add comment |
|
| Can you go into remission without asacol Intestanne 03:23:20 |
| | IF you are in flare up mode, can it happen that you go into remission
without medication?
Does anyone know?
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| | 5 answers | Add comment |
|
| Interesting article in GI WebMD Deborah Schuback 01:39:22 |
| | Mechanisms of Disease: Pathogenesis of Crohn's Disease and Ulcerative
Colitis
This Review considers the evidence underlying the disparate theories on
the pathogenesis of CD and UC, and attempts to reconcile them into a
coherent hypothesis based on available data.
Nat Clin Pract Gastroenterol Hepatol 3(7) 2006
Debs
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| | 1 answer | Add comment |
Wednesday, 19 July 2006
|
| The Move Is Done! Musashi 16:32:54 |
| | Hello everypeeps!
Well I have moved. It took 3 days, Friday, Saturday & Sunday. Sunday
was just taking a few little pieces and cleaning the flat before the
landlady checked it over this morning. Friday was tiring, we done most
of it then, but couldn't do the heavy stuff until Saturday. The
unfortunate thing was that the Friday managed to pull my calf muscles!
It was agony on Saturday. I pulled my calves because our falt is up a
flight of stairs, so carrying the heavy boxes down it...well, there ya
go. Anyway, Saturday was taking the heavy stuff (sofa, my really
abnormally heavy tv etc). A friend came round to help me carry that
stuff as Mum is just the worst lifter and carrier ever lol! It was also
not the best because these past days have been boiling hot. So doing
all that in the heat is hard work.
Anyway, I survived. My bowel has made it through. My ileum was quite
painful last night actually, but it feels a little more settled down
now. Still got the yellow diarrhoea, but there's nothing new with that.
My calf muscles feel a bit better today too.
The house is lovely. Another rental until our house sells, but it's
lovely to stay in until then. We reckon we'll be here about 12 months.
So much better than the flat. My bedroom is huge, I'm so happy lol!
We've also got two reception rooms so me and Mum can have our privacy.
I've got the front room, she's got the back room. Also two toilets
which is the best thing ever for two Crohnies living together. We've
got the main bathroom upstairs, and an outside toilet in the rear yard
(yay, we've got a little concrete rear yard. It's so exciting! We can
get a BBQ lol!) Neither of us want to use the outside toilet, but it's
great for emergencies.
Anyway, back to work. Still gotta sort everything out here. The
majority is done though. Just little bits and bobs now.
All the best.
Musashi
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| | 5 answers | Add comment |
|
| Big mistake--stopped asacol Mzb 07:35:51 |
| | I have CD in the TI. When first dx. my pain, oddly, was (and still is)
always on the LEFT SIDE. It was a gnawing pain often with D.
However, over the years (about 15) my main symptom has been miserable C,
which recently got worse. My doc has been leaning towards an IBS dx. for
that.
Anyway, it recently got much worse. I was wondering if my medications
(flomax for a prostate conditon and asacol) were causing that. So, I slowly
tapered off of them, down to no medications. Well, at first the C got a
little better, but then it got worse, leading me to believe it wasn't due to
medications.
NOW, as of yesterday afternoon, my original symptoms are back. D and
left-sided gnawing pain. I guess I'm kicking myself a bit for stopping the
asacol. I have quickly restarted it on a high dose and I'm hoping that
things will settle down (it is slightly better today)
Any ideas how long it will take to kick back in??
Mel
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| | 6 answers | Add comment |
|
| FDA drug recall Sdores 02:52:42 |
| | Drug Recall:
One lot of Azathioprine tablets, 50 mg. size, used to prevent rejection in
kidney transplant patients and to treat severe rheumatoid arthritis
Reason for recall: tablets of another drug, Methotrexate, were found in
a bottle of Azathioprine
http://www.fda.gov/oc/po/firmrecalls/roxane07_06.html
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| | 1 answer | Add comment |
Tuesday, 18 July 2006
|
| Re: Measuring transit time Sdores 21:52:26 |
| | Paul there is a test for this but I don't know the name for it. I read about
it. UM MOM Susan
"Paul Hinman" <paul.hinman@shaw.ca> wrote in message
news:ex0rg.123708$iF6.114268@pd7tw2no...
Does anyone know of a dye pill or capsule that one can swallow and then
measure the time before it appears in a bowel movement to find out how long
it takes for food to pass through their gut?
--
Paul S. Hinman - VE6LDS
long West 113 deg 27 min 20 sec
lat North 53 deg 27 min 3 sec
Maidenhead Locator DO33gk
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| | 5 answers | Add comment |
Monday, 17 July 2006
|
| ot-does anyone else here have carpal tunnel? Jeff and Mary Berk 22:03:27 |
| | thinking i have this, used scissers at work to trim sharp corners from some
packaging, pain and numbness in my thumb now. sensitive spot between the 2
thumb joints on the outside (right hand), right where the median nerve would
be, if i press on it, shoots pain to the end of my thumb.
jeff
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| | 77 answers | Add comment |
|
