I have had UC for 5 years and have been flaring again the last few months - this time the sigmoidoscoopy showed the inflammation is confined to the sigmoid area. I was advised to use enemas but I have found these very difficult to use as I have around 15 BMs a day and cant hold it in long enough. This is when I try to use Prednisolone liquid enema. However, I find PredFoam enema much easier to use - at least I can hold it in for a couple of hours usually. But, the problem is I dont think the foam is reaching my sigmoid - Im still bleeding with lots of mucous, despite using Predfoam twice a day for over a month.
Do most people on here using enema's use liquid or foam? Which works better for the sigmoid? I have gotten some Pentasa a short while ago, but havent attempted to use it yet, as Im too sore and inflamed to hold liquid in right now. Ive been on Imuran for 18 months which has not helped at all. I use 3 asacol suppositories a day, I dont think they are helping me either! Please help! Thanks.
I use the liquid steroid enemas. I do one at night and make sure I use the toilet first. Then I stay on my left side for about 10-15 minutes, roll onto my back for 10-15 minutes and then to my right side for same amount of time. I used to administer barium enemas for a living, (yeah, yeah, I know...) so I can tell you that the liquid does roll around in there, especially if you stay on your left side first and then gently roll around, staying in each spot for awhile. Your sigmoid acts as a vacume when it is not pushing stool out, it draws the fluids in without much help. (That's why kinky people who put other things up their bums generally lose them and have to have surgery to get out their flashlights, vibrators, gerbils, rocks, you get the picture etc...... I once x-rayed someone whose batteries were still running on the vibrator, his belly was jiggly). If you only hold on to the enemas for 30 minutes you will have absorbed a lot of the medicinal ingrediants. Don't fret, as your colon heals you will be able to hold them longer. Hope that helps, Nina
I was on the CortEnemas (liquid) for months and months. If I used it at bedtime and just fell asleep on my left side, I could hold the enema overnight all but a few times.
Shari
"KS" <KS1@bulldoghome.com> wrote in message news:39621gF5ul99gU1@individual.net...> Hi>
I have had UC for 5 years and have been flaring again the last few > months - this time the sigmoidoscoopy showed the inflammation is> confined to the sigmoid area. I was advised to use enemas but I have > found these very difficult to use as I have around 15 BMs a day and cant> hold it in long enough. This is when I try to use Prednisolone liquid > enema. However, I find PredFoam enema much easier to use - at least I can > hold> it in for a couple of hours usually. But, the problem is I dont think the > foam is reaching my sigmoid - Im still bleeding with lots of mucous, > despite using> Predfoam twice a day for over a month.>
Do most people on here using enema's use liquid or foam? Which works > better for the sigmoid? I have gotten some Pentasa a short while ago, but> havent attempted to use it yet, as Im too sore and inflamed to hold liquid > in right now. Ive been on Imuran for 18 months which has not helped at > all.> I use 3 asacol suppositories a day, I dont think they are helping me > either! Please help! Thanks.>
Thanks for the info, it was really helpful. How long have you been using the steroid enemas? I read somewhere that using steroid enemas can be harmful in the long term, although nowhere near as bad as tablet form. Thats why I am anxious to start using Pentasa - I already have osteo due to Pred at age 28! Im also very lazy and find it takes me ages to use liquid enemas compared to the foam, but I guess I have to put up with the misery If I fail to change that. What happens if you want to pass wind after you use the liquid enema? Do you try and hold it in or what? Can you tell if you really need to go to the toilet. The few times I have used it, I have needed to pass wind and I feel like all the enema is going to come gushing out in my bed, so I charge to the bathroom and within 10 seconds all the enema is down the toilet - so the whole thing was pointless. Its very depressing..
Thanks again, Kam.
"NinaW" <radiography@canada.com> wrote in message news:1110302608.571868.83440@l41g2000cwc.googlegroups.com...>I use the liquid steroid enemas. I do one at night and make sure I use> the toilet first. Then I stay on my left side for about 10-15 minutes,> roll onto my back for 10-15 minutes and then to my right side for same> amount of time. I used to administer barium enemas for a living, (yeah,> yeah, I know...) so I can tell you that the liquid does roll around in> there, especially if you stay on your left side first and then gently> roll around, staying in each spot for awhile. Your sigmoid acts as a> vacume when it is not pushing stool out, it draws the fluids in without> much help. (That's why kinky people who put other things up their bums> generally lose them and have to have surgery to get out their> flashlights, vibrators, gerbils, rocks, you get the picture etc...... I> once x-rayed someone whose batteries were still running on the> vibrator, his belly was jiggly).> If you only hold on to the enemas for 30 minutes you will have absorbed> a lot of the medicinal ingrediants. Don't fret, as your colon heals you> will be able to hold them longer.> Hope that helps,> Nina>
Why did they give you pentasa? Most of that stuff will never get there. It gets released high in the GI tract. Colazal would be a better choice. But, I guess if you're going 15 times a day, then... maybe not....
As for passing gas... you kind of have to wait a bit. Eventually, you can do it (like after a couple of hours). The problem with these enemas is that they seem to induce gas and cramping. I don't know if the bacteria eat stuff in there or what, but as soon as I put a rowasa enema in, it's like a gas machine in my colon. Once things heal more, though, the body gets more used to it, and you get less gas and cramping.
I've been using the steroid enemas for 2 weeks and the salofalk for a couple months, on and off. As for the gas, that's one of the reasons I use the toilet first. The foam may be causing some of the gas? I try to get the tip in as far as I can, pushing it tight so there are so leaks, in (gas) or out (solution). I find that putting the solution in too fast causes cramps and gas. If that happens I lay still and breathe, doing my best to calm things down with sheer willpower. Eventually the cramps pass and all is well. The more I do them the less often I get the cramps. Good luck, I hope you figure it out. Nina
Ur not alone. I've got UC in the last 8inchs of my bowel (or at least that's what the doctors tell me). I've used PredFoam before. And to be honest I find it quite effective in stopping a flare up. They are a nightmare to administer though. I think Nina has mentioned the lie down method. I too find it a nightmare to keep the stuff in. The best thing I've found is to administer the stuff and then lie on your left side for 10mins or so, then front. You will feel like u want to explode and let all the stuff out, but I find after about 25mins of lying down the urge to go disappears and you can get on with things. Just hold tight for the first 20mins and the discomfort goes.
Its not so bad to follow this pattern at night before you go to bed as ur gonna lie down anyway, but in the morning it is nothing short of a nightmare.
Once the flare subsides I then try to switch to pred suppositories.
I hope this helps.
UC sucks!!!
Adam
"KS" <KS1@bulldoghome.com> wrote in message news:39621gF5ul99gU1@individual.net...> Hi>
I have had UC for 5 years and have been flaring again the last few > months - this time the sigmoidoscoopy showed the inflammation is> confined to the sigmoid area. I was advised to use enemas but I have > found these very difficult to use as I have around 15 BMs a day and cant> hold it in long enough. This is when I try to use Prednisolone liquid > enema. However, I find PredFoam enema much easier to use - at least I can > hold> it in for a couple of hours usually. But, the problem is I dont think the > foam is reaching my sigmoid - Im still bleeding with lots of mucous, > despite using> Predfoam twice a day for over a month.>
Do most people on here using enema's use liquid or foam? Which works > better for the sigmoid? I have gotten some Pentasa a short while ago, but> havent attempted to use it yet, as Im too sore and inflamed to hold liquid > in right now. Ive been on Imuran for 18 months which has not helped at > all.> I use 3 asacol suppositories a day, I dont think they are helping me > either! Please help! Thanks.>
Thanks everyone for your help, I really appreciate it.
Adam - did you ever try asacol suppositories? I used the Pred ones for a while, but found they leaked out a lot. Plus, its a shame they only come in 5mg. Things have gotten really bad now, and my Dr has me back on 40mg Pred tablets Im still using the Predfoam, but it gives me gas problems, which is REALLY painful...but im gonna stick with it. My hospital have started pestering me again to have a colostomy, but I am determined not to. Sigh.
Kam.
"Adam" <adam_shahin@hotmail.com> wrote in message news:_nIXd.2002$3A6.673@newsfe1-gui.ntli.net...> Hi Kam,>
Ur not alone. I've got UC in the last 8inchs of my bowel (or at least > that's what the doctors tell me). I've used PredFoam before. And to be > honest I find it quite effective in stopping a flare up. They are a > nightmare to administer though. I think Nina has mentioned the lie down > method. I too find it a nightmare to keep the stuff in. The best thing > I've found is to administer the stuff and then lie on your left side for > 10mins or so, then front. You will feel like u want to explode and let > all the stuff out, but I find after about 25mins of lying down the urge > to go disappears and you can get on with things. Just hold tight for the > first 20mins and the discomfort goes.>
Its not so bad to follow this pattern at night before you go to bed as ur > gonna lie down anyway, but in the morning it is nothing short of a > nightmare.>
Once the flare subsides I then try to switch to pred suppositories.>
I hope this helps.>
UC sucks!!!>
Adam>
"KS" <KS1@bulldoghome.com> wrote in message > news:39621gF5ul99gU1@individual.net...>> Hi>>
I have had UC for 5 years and have been flaring again the last few >> months - this time the sigmoidoscoopy showed the inflammation is>> confined to the sigmoid area. I was advised to use enemas but I have >> found these very difficult to use as I have around 15 BMs a day and cant>> hold it in long enough. This is when I try to use Prednisolone liquid >> enema. However, I find PredFoam enema much easier to use - at least I >> can hold>> it in for a couple of hours usually. But, the problem is I dont think >> the foam is reaching my sigmoid - Im still bleeding with lots of mucous, >> despite using>> Predfoam twice a day for over a month.>>
Do most people on here using enema's use liquid or foam? Which works >> better for the sigmoid? I have gotten some Pentasa a short while ago, but>> havent attempted to use it yet, as Im too sore and inflamed to hold >> liquid in right now. Ive been on Imuran for 18 months which has not >> helped at all.>> I use 3 asacol suppositories a day, I dont think they are helping me >> either! Please help! Thanks.>>
I have UC and recently became allergic to salycilates (5-ASA). So...after about a month with no drugs my dr put me on betnesol enemas. I also find them very difficult to use/keep in. I always have.
Actually my current package has a recommendation to insert them while lying on my left side then immediately roll over onto the belly and stay there for 5-10 minutes. I have been finding this immensely helpful in keeping them in. If I wait my 5 minutes and then roll over to my side to read a book then I sometimes find the urge to expel gets strong. If that happens I roll back onto my stomach for a few more minutes.
For my peace of mind I also put a towel on the bed "just in case". I find lowering the "stress" by having it htere actually helps. I know that if I had a leak at least it would be confined to the towel. 5-ASA enemas are slimy/thick and wouldnt' soak through the towel. The cortisone enemas are more watery but somehow I just feel like the towel would get most if it if I have an accident. Besides, what's the worst that could happen? I may have to change the sheets?
BTW I also find if I get up out of bed within the first 15 minutes or so then the enema is a gonner. Try really hard to resist gettingout of bed. If you feel you need to, double up the towel. Or put one under you and one on top of you as you lie on your stomach.
Does everyone here using enemas - do it every night? Assuming I manage to get into remission from the Pred I would need to start using enema's but I am sort of hoping that maybe I could get away with using them every other night or maybe every 2 days. Would this work? I know I should just get on with it, but the thought of having to go through this ritual every night forever is truly depressing. Do your symptoms return quickly if you start skipping enema's?
Thanks again for your advice
Kam.
<rheostaticsfan@gmail.com> wrote in message news:1110488004.792312.280490@o13g2000cwo.googlegroups.com...>I have UC and recently became allergic to salycilates (5-ASA).> So...after about a month with no drugs my dr put me on betnesol enemas.> I also find them very difficult to use/keep in. I always have.>
Actually my current package has a recommendation to insert them while> lying on my left side then immediately roll over onto the belly and> stay there for 5-10 minutes. I have been finding this immensely> helpful in keeping them in. If I wait my 5 minutes and then roll over> to my side to read a book then I sometimes find the urge to expel gets> strong. If that happens I roll back onto my stomach for a few more> minutes.>
For my peace of mind I also put a towel on the bed "just in case". I> find lowering the "stress" by having it htere actually helps. I know> that if I had a leak at least it would be confined to the towel. 5-ASA> enemas are slimy/thick and wouldnt' soak through the towel. The> cortisone enemas are more watery but somehow I just feel like the towel> would get most if it if I have an accident. Besides, what's the worst> that could happen? I may have to change the sheets?>
BTW I also find if I get up out of bed within the first 15 minutes or> so then the enema is a gonner. Try really hard to resist gettingout of> bed. If you feel you need to, double up the towel. Or put one under> you and one on top of you as you lie on your stomach.>
Just what has worked for me. I hope it helps you!>
You might need to use them every night for a few weeks, and then once your symptoms improve use them less often. I have been using Pentasa suppositories for the first time recently, and was amazed at the results from just using 1 one week, and 2 the next (mind you my inflammation isn't too bad at the moment, and I use Colifoam every day in addition). I have heard of people using Rowasa enemas every night, for one week a month. Others have mentioned using them every second or third night. But an intial bout of every day seems to be necessary.
You'd be surprised at what becomes routine after a while as well - you might find the enemas depressing at the moment, but once it becomes easier it probably won't bother you so much. I have used Colifoam once or twice a day (mostly twice) for most of the past 3 years and 9 months. It's part of my routine, much like brushing my teeth!
Take care,
Amy.
KS wrote:> Does everyone here using enemas - do it every night?> Assuming I manage to get into remission from the Pred I would need to start > using enema's but I am sort of hoping that maybe I could get away with using > them every other night or maybe every 2 days. Would this work? I know I > should just get on with it, but the thought of having to go through this > ritual every night forever is truly depressing. Do your symptoms return > quickly if you start skipping enema's?>
Kam, I do a steroid enema on alternate nights. I'm supposed to do a 5-ASA on the other nights but I do skip on occasion, with no ill effects. It depends on you and your severity really. Nina
Howard Jarrett 16 March 2005 18:47:19 [ permanent link ]
Kam No, everyone with UC & CD does not need to use enemas. It depends where the inflamation is. I have UC. My inflamation was only within the first several inches of the rectum. So my dr did have me using enemas. Initially he tried treating me with only enemas. When the enemas along did not clear up the inflamation, he put me on 5-ASA meds(sulfasalazine, then Pentasa, and finally Colazal) as well.
After the inflamation was cleared up, my dr's instruction were to 'use as needed.' This meant that when blood showed up in my stools, I was to use the enemas for several days until the blood no longer showed up.
I have not used any enemas for almost 2 years, since the Colazal I am on seems to be doing a good job.
In the earlier years after my diagnosis there were several years when I needed the enemas 3-4 times per week, sometimes less. With my UC I found that if I used the enemas for 3-4 days immediately after seeing blood, that would usually clear it us. But if I delayed, pretending that it would clear up on it's own, I may end up needing the enemas for 2-3 weeks to get it cleared up.
Good luck. Howard UC since 1995
"KS" <KS1@bulldoghome.com> wrote in message news:39jg88F61rfjlU1@individual.net...> Does everyone here using enemas - do it every night?> Assuming I manage to get into remission from the Pred I would need to > start using enema's but I am sort of hoping that maybe I could get away > with using them every other night or maybe every 2 days. Would this work? > I know I should just get on with it, but the thought of having to go > through this ritual every night forever is truly depressing. Do your > symptoms return quickly if you start skipping enema's?>
Thanks again for your advice>
Kam.>
<rheostaticsfan@gmail.com> wrote in message > news:1110488004.792312.280490@o13g2000cwo.googlegroups.com...>>I have UC and recently became allergic to salycilates (5-ASA).>> So...after about a month with no drugs my dr put me on betnesol enemas.>> I also find them very difficult to use/keep in. I always have.>>
Actually my current package has a recommendation to insert them while>> lying on my left side then immediately roll over onto the belly and>> stay there for 5-10 minutes. I have been finding this immensely>> helpful in keeping them in. If I wait my 5 minutes and then roll over>> to my side to read a book then I sometimes find the urge to expel gets>> strong. If that happens I roll back onto my stomach for a few more>> minutes.>>
For my peace of mind I also put a towel on the bed "just in case". I>> find lowering the "stress" by having it htere actually helps. I know>> that if I had a leak at least it would be confined to the towel. 5-ASA>> enemas are slimy/thick and wouldnt' soak through the towel. The>> cortisone enemas are more watery but somehow I just feel like the towel>> would get most if it if I have an accident. Besides, what's the worst>> that could happen? I may have to change the sheets?>>
BTW I also find if I get up out of bed within the first 15 minutes or>> so then the enema is a gonner. Try really hard to resist gettingout of>> bed. If you feel you need to, double up the towel. Or put one under>> you and one on top of you as you lie on your stomach.>>
Just what has worked for me. I hope it helps you!>>
Hi, I'm Joe from Malaysia. I am looking for PredFoam enema for my Mum. She had a Ulcerative Colitis for about 8 years now. She also had a Colostomy for 2 years now. Now she is thinking of doing the reversal operation which she found really depressed of using the bag. After doing the Colonoscopy, with the Gaestroentrologist, we found that the colon still inflame and this need to be settle the before the reversal operation. He prescribe my mum the Enema and for the best result he asked me to find the Predfoam enemas. however, there is no supply of this type of Enema in my country. Can anyone tell me where I can get supply of Predfoam enema? I am willing to pay although I need to get the supply from overseas. Please e-mail me at Johanis78@gmail.com. I really appreciate your help.
I am using Prefoam enema in dubai,uae. They are available with some of the chemists here. Altho not sure if they can give it without doctor's prescriptions.
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