Remicade

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GYXE > Chronic colitis > Remicade 25 November 2007 09:57:58

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Remicade
Mr.D. 25 November 2007 09:57:58
	Hello To All, I am sending this post on behalf of my daughter who has Crohns disease. About five years ago sshe had most of her large bowel removed nad was pretty good after that . Now she is having difficulties again and her doctor at Mt.Sinai hospital in Toronto, Canada is asking her to go on a trial study with Remicade or her alternative is perminent surgery. Does anyone have any information or experience with this drug, side effects etc... From a concerned dad, please answer back.
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Wayne Marsh 22 February 2005 06:47:02 [ permanent link ]
	Mr.D. wrote on 2/21/05 8:21 PM: Does > anyone have any information or experience with this drug, side effects> etc... I started Remicade a couple of years ago, after my second resection. A half-year later, I had my first more-or-less normal colonoscopy in several decades. I still have symptoms, mostly diarrhea, but I believe they're mostly "mechanical;" that is, caused by the missing several feet of intestine, not by continuing inflammation. I've had no noticeable side effects from the drug. It doesn't work so well in everybody, but it's certainly worth a trial for your daughter. Wayne Marsh Minneapolis, Minnesota, USA waynegmarsh@mac.com
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Sdores 22 February 2005 16:12:29 [ permanent link ]
	I haven't had to go to this medication but most that I know that are using it have had fair to excellent results with the Remicade along with usually Imuran, 6mp or MTX. I would do it myself if I needed too. I know others will be along to also let you know what it has done for them. UM MOM Susan "Mr.D." <ddalessio@cogeco.ca> wrote in message news:0GwSd.7278$RM2.5957@read1.cgocable.net...> Hello To All,> I am sending this post on behalf of my daughter who has Crohns > disease. About five years ago sshe had most of her large bowel removed nad > was pretty good after that . Now she is having difficulties again and her > doctor at Mt.Sinai hospital in Toronto, Canada is asking her to go on a > trial study with Remicade or her alternative is perminent surgery. Does > anyone have any information or experience with this drug, side effects > etc...> From a concerned dad, please answer back.>
		Add comment


Jr 23 February 2005 08:02:30 [ permanent link ]
	I have Crohn's with an ileostomy, having lost my colon over 15 years back. I've been on Remicade for over three years along with 6-MP and Pentasa. The only side effect from this regimen seems to be slight anemia, which is preferable to periodic bouts with blockages. Good luck to you and your daughter. JR "Mr.D." <ddalessio@cogeco.ca> wrote in message news:0GwSd.7278$RM2.5957@read1.cgocable.net...> Hello To All,> I am sending this post on behalf of my daughter who has Crohns > disease. About five years ago sshe had most of her large bowel removed nad > was pretty good after that . Now she is having difficulties again and her > doctor at Mt.Sinai hospital in Toronto, Canada is asking her to go on a > trial study with Remicade or her alternative is perminent surgery. Does > anyone have any information or experience with this drug, side effects > etc...> From a concerned dad, please answer back.>
		Add comment


Jeff and Mary 23 February 2005 08:59:42 [ permanent link ]
	i have been on remicade for 3 years. no side effects here at all. between that and my methotrexate, no crohns or pg sx's. jeff "Mr.D." <ddalessio@cogeco.ca> wrote in message news:0GwSd.7278$RM2.5957@read1.cgocable.net...> Hello To All,> I am sending this post on behalf of my daughter who has Crohns> disease. About five years ago sshe had most of her large bowel removed nad> was pretty good after that . Now she is having difficulties again and her> doctor at Mt.Sinai hospital in Toronto, Canada is asking her to go on a> trial study with Remicade or her alternative is perminent surgery. Does> anyone have any information or experience with this drug, side effects> etc...> From a concerned dad, please answer back.>
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Web Surfer1919 24 February 2005 04:36:35 [ permanent link ]
	dear concerned dad. i've had UC for the last 5 years and my only option has been prednisone. the last time i was on it for 6 months. recently i went into a bad flare again but this time i tried the scdiet... and the results were nothing short of miraculous! in just a couple of days the bleeding stopped. a week later i'm still improving. the response was more dramatic than any drug therapy. i just think before you have any drastic procedures done you should try this diet. buy or borrow the book "breaking the vicious cycle" by elaine gottschall and visit these websites: http://www.breakingtheviciouscycle.info/index.htm http://www.scdiet.org/ 3 years ago i balked at doing this diet because it seemed too difficult. now i'm wondering why i never gave it a try! best of luck to you, darrin
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Mr.D. 25 February 2005 03:42:30 [ permanent link ]
	Is anyone taking Remicade in Ontario Canada. Does OHIP cover the costs? what about the Trillium or Ontario Drug Benefit plans?
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Mary Z 30 September 2005 16:30:41 [ permanent link ]
	On 29 Sep 2005 20:39:37 -0700, MAILFRMPA@AOL.COM wrote: Is there likely to be any problem with my>ability to drive after the infusion? It will be about half-hour on>hiways. There shouldn't be if they give you benedryl it will make you sleepy. Ask if you will be receiving benedryl if not you should be fine. -- MZ Visit my website: http://www.mzuschlag.com
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Harvey R. Stone 30 September 2005 16:44:21 [ permanent link ]
	"Mary Z" <mzuschlag@gmail.com> wrote in message news:7dfqj1h6bh2qdi6e1mi20s70picc10h298@4ax.com...> On 29 Sep 2005 20:39:37 -0700, MAILFRMPA@AOL.COM wrote:> Is there likely to be any problem with my>>ability to drive after the infusion? It will be about half-hour on>>hiways.> There shouldn't be if they give you benedryl it will make you sleepy.> Ask if you will be receiving benedryl if not you should be fine. --> MZ> Visit my website:> http://www.mzuschlag.com Just a side note,,,, when I was on Remicade, I took Allegra instead of the other stuff and never had a sleepy problem. Harv
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Duckie 1 October 2005 22:18:52 [ permanent link ]
	Yep - what she said... Duckie RoseB wrote: You may be drowsy if they give you benedryl, Martin.> I used to drive myself home, but then this is a relatively small town,> and i was usually at the hospital for about 4 hours so i felt as> though the benedryl was wearing off some. > I hope that remicade works well for you.> Rose @}>->-- -- _('> (_<_) _ _('< -quack (_<_) _ __('< QUACK! <_{__) _('< "\|,,\|_" (_<_) _('< "AFLAC!" (_<_)
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Jenn 5 March 2006 18:27:24 [ permanent link ]
	My boyfriend, now 22 years old, was born with a debilitating form of JRA and OA; they realized he had it when he was 6 months old and his condition has been worsening ever since. The pain from the condition forced him on painkillers (Oxycontin) when he was young, and he became addicted to narcotics because of this. He no longer is allowed to use narcotic pain relief. We all thought he was in for a life of hell until when in November his rheumatologist suggested that he get a new injection: Remicade. After the first two injections, he was actually able to fly out of bed without bouncing, nearly run up the stairs, and do all sorts of other things that he hadn't been able to do in years. However, after the second injection (he gets injections every 4 weeks), the effectiveness of the treatment has steadily decreased to the point where it has not helped at all. He wakes up every morning with muscle cramping and in such severe pain it takes him about half an hour to get to the couch. He is actually doing worse than he was before he got started on the treatment. Admittedly, some of this can be attributed to the weather; we live in Central Pennsylvania and it is mid-winter. But I really don't think that all of his problems are because of the cold. I spoke with his mother about some of the precautions about Remicade and the "warning signs" that he was showing - muscle/joint pain, severe fatigue, dark urine, fungal infections, severe cough with excess sputum - and she waved me off, saying that Remicade worked, and that they just needed to increase his dosage - already! He has Hepatitis C and is on other medication for his addiction. Although his doctor knows this, I'm still worried that he's having an adverse reaction because of his liver problems, although his liver specialist told him his liver was just fine in October. Have these problems occurred with anyone else who has had the Remicade injection? I've looked online and have not seen many/any stories of people whose pain has actually increased since beginning treatment. Are there any pain remedies/habits that I should know about/talk to him about that don't include ibuprofen or narcotics? Can anyone help at all? He's very depressed about his situation, and so am I. I just feel that there has to be something we're missing; how can you be 22 and barely be able to walk at all?
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Debbie M 5 March 2006 23:24:26 [ permanent link ]
	(((((((Jenn))))))) I'm so sorry to hear about your boyfriend. He sounds like he has been through so much. I don't know anything about Remicade, but there are some here who have used it. Maybe the will be along soon to answer some of your questions. I hope you get some answers and your boyfriend feels better soon. debbie m.
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Blades49456 6 March 2006 00:49:07 [ permanent link ]
	Enbrel, Remicade, and Humira are all anti-TNF medications, but not exactly alike. A different kind of medication, Rituxan (Rituximab) has proven useful for some autoimmune diseases, including RA. It might be worth looking into. -- Bruce (WG '97)
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Mary Z 6 March 2006 17:02:48 [ permanent link ]
	On 5 Mar 2006 07:27:24 -0800, "Jenn" <girliebytes@hotmail.com> wrote: spoke with his mother about some of the precautions about Remicade>and the "warning signs" that he was showing - muscle/joint pain, severe>fatigue, dark urine, fungal infections, severe cough with excess sputum>- and she waved me off, saying that Remicade worked, and that they just>needed to increase his dosage - already! He has Hepatitis C and is on>other medication for his addiction. Although his doctor knows this,>I'm still worried that he's having an adverse reaction because of his>liver problems, although his liver specialist told him his liver was>just fine in October. Have these problems occurred with anyone else>who has had the Remicade injection? I've looked online and have not>seen many/any stories of people whose pain has actually increased since>beginning treatment. I have been on Remicade for 5 years and it put me in remission. Dose increases are very common, and many of us also take the drug at shorter intervals. This is all very common, not sure where you read it is unusual. Remicade doesn't really effect the liver so I would be surprised if there was an effect. Joint pain can increase if the drug is not working well. I am slightly more susceptible to fungal infections but it is not a big deal. Give the dose increase a chance before you decide Remicade is not working. You might have him get a chest x-ray if lung issues are a concern. RA can effect the lungs, especially if the disease is not under good control. Good luck. -- MZ
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samstuff 25 November 2007 09:57:58 [ permanent link ]
	ATTN: Crohn’s Disease Patients in Ontario On behalf of e-Style Research, we would like to personally invite you to participate in our upcoming research undertaking. We are conducting an important study among Crohn’s Disease Patients in order to hear your opinions and perceptions on Treatment options. The purpose of this study is for research only and your anonymity is assured. This phase, there are two options for our research undertakings: Options 1: In-Depth Interviews These sessions are taking form of an in-depth interview which would involve pairing up with you and your caregiver (could be anyone that’s assists you with your Crohn’s Disease) for a 75 minute discussion and would offer an honorarium of $100 each to thank you for your time. These can be scheduled on Wednesday November 28th (Between 12pm-4pm) or Thursday November 29th (Between 11am-5pm) depending on which day/time would be most convenient for you. All sessions will be held at one of our research facilities in the Yonge and Sheppard area. Options 2: Focus Groups These sessions are taking form of a focus group which are 90 Minutes in length, and would offer an honorarium of $100 for your time. These groups will be help at 6:30pm on Wednesday November 28th or Thursday November 29th, depending on which would be most convenient for you. All groups will be held at one of our research facilities in the Yonge and Sheppard area. It is very important to our research that you participate in this study. We would appreciate a response at your earliest convenience. For more information or to sign up for this study please e-mail samir@estyle.biz or call Sam Dhalla toll free at 1-877-685-2239 x223. Thank you in advance for your taking the time to review our invitation and your prompt response. Best regards, eStyle Research Contact for this study: Sam Dhalla Ph.: 1-877-685-2239 x223 Email: samir@estyle.biz Web: www.estyle.biz
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GYXE > Chronic colitis > Remicade 25 November 2007 09:57:58

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