FACELESS CHILD: Another reason to be glad i'm childfree
Maria Full of Ice 13 December 2004 09:29:20
These are good parents. They have a good attitude. They are handling this the right way. If it was my child, I would have had a nervous breakdown. But when I see children with severe deformities, it makes me glad to be childfree.
-- JACKSONVILLE, FL -- When most parents have a baby, they spend months dreaming about what their bundle of joy will look like. Will she look like mom? Will he have dad's eyes? But for one local Navy family, the birth of their daughter didn't give them the answers to those questions. Their daughter was born without a face.
When Tammy was pregnant, she knew something was wrong. At worst, they thought maybe their baby had a cleft lip.
So Tammy, and her husband Tom, went to the hospital happy, until the birth.
"The nurse is like, 'We got her stable, we need to rush her upstairs,'" explains Tom, as he recalls every minute of that day. "And the nurse asked, 'Do you want your wife to see her now?'"
Tom says he thought to himself, "Before she gets the shock I did, let me take a picture so she's prepared."
Tammy hadn't seen her new baby yet, because she almost bled to death during delivery. Tammy would be okay, meanwhile, dad went to take pictures of his new daughter.
But no matter what, these new parents had a wish. "That if there was something wrong, she wouldn't be alone. We wanted to make sure she felt loved," said Tom, as he began to cry. "She squeezed my hand."
Little Juliana is missing 30 - 40 percent of the bones in her face.
"She has no upper jaw, no cheek bones, no eye sockets, and she's missing the corner of her ear," explains Tom.
Her birth defect is called Treacher Collins Syndrome. Doctors say it's the worst case they've ever seen.
So, how do you get people to see past all the defects, and find her heart? For mom, it just hurts.
"I just wish people would ask questions. Don't just stare," says Tammy. "I guess the most hurtful thing came not long ago, a little girl said she was disgusting."
Juliana has to eat through her stomach, and she has a trach to breathe. Already, less than two years into her life, she's had 14 surgeries. Doctors say she could need at least 30 more.
Every time she goes to the hospital, doctors make a mold of her head, and then reconstruct her skull to figure out the next step.
It's a life-long process that's draining for Tammy and Tom. Even still, they're thankful and full of love for their sweet child.
"God never gives you more than you can handle. I figure she has a lot to show everyone... to show the world," says Tom.
If you are interested in helping the Wetmore family, a savings account is set up for donations at the Vystar Credit Union in Middleburg.
Donations can be made at ANY Vystar Credit Union to Juliana Wetmore at member number 2102465.
Direct donations can be sent to:
Juliana Wetmore 3018 Hickory Glenn Dr. Orange Park, FL 32065
------------------ Icebreaker "Are you kidding? When I turn my hearing-aid up to ten, I can hear a canary break wind in Lauderdale!"
These are good parents. They have a good attitude. They are handling this> the right way. If it was my child, I would have had a nervous breakdown.> But when I see children with severe deformities, it makes me glad to be> childfree.>
If you are interested in helping the Wetmore family, a savings account is> set up for donations at the Vystar Credit Union in Middleburg.>
Donations can be made at ANY Vystar Credit Union to Juliana Wetmore at> member number 2102465.>
Direct donations can be sent to:>
Juliana Wetmore> 3018 Hickory Glenn Dr.> Orange Park, FL 32065>
why is there always a beg element to stories like this? -- Sandra
On Mon, 13 Dec 2004 00:29:20 -0500, "Maria Full of Ice" <Maria_Full_of_Ice@walmart.com> wrote:
These are good parents. They have a good attitude. They are handling this>the right way. If it was my child, I would have had a nervous breakdown.>But when I see children with severe deformities, it makes me glad to be>childfree.>
-- JACKSONVILLE, FL -- When most parents have a baby, they spend months>dreaming about what their bundle of joy will look like. Will she look like>mom? Will he have dad's eyes? But for one local Navy family, the birth of>their daughter didn't give them the answers to those questions. Their>daughter was born without a face.
A quick google search results in an article that makes the statement that the disorder is....
"believed to be inherited...."
Ten will get you twenty that these two imbiciles will just "HAVE TO" sprog again to test the theory....
-- JACKSONVILLE, FL -- When most parents have a baby, they spend>>months dreaming about what their bundle of joy will look like. Will>>she look like mom? Will he have dad's eyes? But for one local Navy>>family, the birth of their daughter didn't give them the answers to>>those questions. Their daughter was born without a face.
A quick google search results in an article that makes the statement> that the disorder is....
"believed to be inherited...."
Ten will get you twenty that these two imbiciles will just "HAVE TO"> sprog again to test the theory....
Wanna bet?
What, I'm not ready to lose my money!
Gads, that is just so awful. Why don't people get tested before they spawn??? Why? Why?
begin Abbie F <AbbieFisback@chopthisyahoo.com> quote:
These weird things are getting more common. I *know* we've had one like> this come up before; remember humming "Eyes Without A Face!"
You too? I couldn't help the song coming into my head when reading the article.
In another time, in another place, the baby might just have been quietly smothered by the midwife, and everyone told (truthfully) that it had did not survive long after birth.
Aussie Lurker 15 December 2004 15:00:41 [ permanent link ]
"Auntie Em" <AuntieEM@yahoo.com> wrote in message news:53lur09mbbm0dgv3hqj91p6l9qr17grn4r@4ax.com...> On Mon, 13 Dec 2004 00:29:20 -0500, "Maria Full of Ice"> <Maria_Full_of_Ice@walmart.com> wrote:> A quick google search results in an article that makes the statement> that the disorder is....>
"believed to be inherited....">
Ten will get you twenty that these two imbiciles will just "HAVE TO"> sprog again to test the theory....>
Wanna bet?
It may be inherited but their older daugher shown in the video with Julianna doesnt have the sydrome. Maybe it's one of those conditions that only hits some of the time.
Because the overwhelming majority of children don't have birth defects, and the technology to test for rare birth defects does not exist AFAIK. We haven't acheived Gattica yet.
After all having children is often a matter of ignoring even obvious & common dangers, why should people heed rare and hidden ones?
On Wed, 15 Dec 2004 22:00:41 +1100, "Aussie Lurker" <hahaha@lol.com> wrote:>It may be inherited but their older daugher shown in the video with Julianna >doesnt have the sydrome. Maybe it's one of those conditions that only hits >some of the time.
How "some of the time" is too often?
Unless experts could point to an external cause that could be avoided in another pregnancy, I'd be loathe to have a child if I'd already given birth to one like that.
...But then again, I'm already loathe to having a child, so maybe that doesn't prove anything....
To the parents, Keep going on your journey with your precious girl. Every day it is worth it. Don't listen to the fools who know no better. Don't look at the fools that stare and nudge. I send you all the love possible.xxxxxxx
I understand it is our birthright to make babies, but why oh why do good people have the bad itch to make their own baby when they could have adopted? Millions of perfectly healthy babies born to parents who don't want them are discarded, waiting in orphanages for someone to give them a chance at life. But no. We have to make our own. Why? Your genes are somehow special? Better? What? Oh the foolish pride of it all. And then when you have a faceless/deformed baby, then what?
6.5 billion people walking this planet. you'll reuse plastic, recycle paper. But you want to make new babies when there are ones here already? If you want to be a parent, just go adopt. Trust me, there are millions of perfectly healthy, happy babies waiting.
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